SPRINGFIELD – State Senator Laura Fine has passed legislation to ensure reports of abuse or neglect in state-operated developmental centers are thoroughly investigated and addressed. The legislation intends to address allegations of abuse at Choate Mental Health and Developmental Center in Anna, Illinois, where certain staff members have been accused and charged with multiple accounts of abuse to patients.
“Vulnerable residents living in state-run facilities are entitled to the best care possible and deserve to be treated with dignity and respect,” said Fine (D-Glenview). “This initiative will ensure people who take advantage of people in our care will face consequences for their actions.”
Choate Mental Health and Developmental Center serves patients struggling with mental and behavioral health concerns and/or developmental disabilities. Some employees of Choate have been charged with and found guilty of physically or emotionally abusing patients, as well as obstructing official probes and lying to investigators about wrongdoing.
SPRINGFIELD – State Senator Laura Fine’s legislation to require public institutions to provide accommodations for individuals with disabilities if they meet transparent eligibility requirements passed the Senate, making it one step closer to becoming law.
“Destigmatizing disabilities in our society is a multi-step process,” said Fine (D-Glenview). “Ensuring accommodations are easily accessible to university students is a good place to start.”
Currently, federal law only protects students with disabilities seeking public higher education from being discriminated against based on their disability and does not outline the need for reasonable academic accommodations past high school. Senate Bill 99 would establish a process for students with disabilities to receive reasonable accommodations from public universities and colleges.
SPRINGFIELD – To provide early detection of a rare genetic disease, Metachromatic Leukodystrophy, or MLD, State Senator Laura Fine advanced legislation to add a screening test for MLD to the Illinois Department of Public Health’s Newborn Screening Program.
“Early screening is essential to getting children the care they need as soon as possible,” said Fine (D-Glenview). “Adding MLD to the Newborn Screening Program would give families and children with MLD the opportunity to pursue treatment earlier — improving their quality of life.”
MLD is a genetic disorder leading to progressive loss of nervous system function and early death. Currently, MLD is diagnosed through a blood test looking for enzyme deficiency, a urine test or genetic testing. Additional tests can be conducted on those who show progressive symptoms of MLD. While there is no cure for MLD, diagnosing the disease early can lead to treatment options that make a difference in the patient’s quality of life.
Read more: Senator Fine to expand newborn screening test to include MLD
SPRINGFIELD – Patients with PANDAS and PANS have historically faced challenges receiving the health care coverage they need through insurance plans. An initiative led by State Senator Laura Fine would ensure patients are able to access all necessary treatment for these conditions without facing barriers from insurance companies, closing current loopholes some insurers are utilizing to not cover essential care.
“Without proper treatment, PANDAS and PANS can be debilitating diseases,” said Fine (D-Glenview). “This measure will make this essential treatment more accessible for patients, helping them recover and improve their quality of life.”
Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) occur after an infection, most commonly a strep infection. Brain inflammation occurs when the body’s immune system mistakenly attacks healthy brain cells, leading to autoimmune processes that affect central nervous system function. An affected child generally has a sudden, dramatic change in personality, displayed as symptoms of obsessive-compulsive disorder like anxiety, tics or other abnormal movements, personality changes, sensory sensitivities, restrictive eating and more.
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